Welcome to this edition of Worldwide Hospice and Palliative Care Online.
In this, the Global Year Against Pain, the International Association
for the Study of Pain (IASP) (http://www.iasp-pain.org)
is launching the ‘Real Women, Real Pain’ campaign to draw attention to the
significant impact of chronic pain on women and the lack of attention to this
global problem. IASP has produced 18 fact sheets on female-specific pain issues
in English, Arabic, Chinese, French, Russian, Spanish, Gujarati and Hindi -
available online at:
http://www.iasp-pain.org/globalyear. Read more about other IASP initiatives
in this issue.
Worldwide Hospice and Palliative Care Online (WHPCO) is a free,
signposting tool that aims to help bridge the information gap for people in
resource-constrained settings and for anyone who wants to feel a part of the
worldwide hospice and palliative care community. Please help us to share
information and experiences in palliative care by sending us news of resources
that may be helpful to others.
WHPCO is compiled bi-monthly by Hospice Information in collaboration with Help
the Hospices' international team. It is circulated to over 2,600 recipients in
well over 100 countries.
To help us ensure safe delivery of our emails, please take a moment to add
whpco@hospiceinformation.info to your address book, or trusted sender list and please let us know of any
changes to your own email address.
To convert any currencies referred to in this newsletter, try
http://www.xe.com/ucc/ |
Newsletter contents |
|
1.
Breaking news
1.1 International Journal of Palliative Nursing Awards 2008 – Dr
Mary Vachon receives lifetime achiever award |
|
2.
Dates to celebrate
2.1 Call for pain treatment and palliative care to be promoted to level
of Fundamental Human Rights |
|
3.
Links & opportunities -
twinning, volunteer placements and jobs 3.1
UK Social worker seeks social work contacts in Australia, New Zealand, USA or
Canada
3.2 Hospice in the West, Krugersdorp, South Africa, seeks Nursing
Services Manager and Social Worker
3.3 Centre for African Family Studies / Centre d’Etudes de la Famille Africaine
advertises five posts |
4.
Newsbsites
4.1 New Guidelines for home-based palliative care service
4.2 Plans for Cicely Saunders Institute of Palliative Care announced
4.3 New reports from Measure Demographic and Health Studies (DHS) |
5. Hospice and palliative care in practice
5.1 REPACARO - new Romanian project on palliative care5.2
Bridging the Morphine Gap - palliative care in India on BBC Radio 4
5.3 Post-election violence impacts on palliative care in Kenya
News from National, Pan-National and Regional Palliative Care Associations
5.4 African Palliative Care Association (APCA)
5.5 EAPC Pre-conference seminar - 24 - 27 May 2008
- Pain, cachexia and depression in palliative care - genetics,
assessment/classification and treatment
5.6 Calling all National Associations in Europe: the Budapest Commitments
- a framework for palliative care development
5.7 Partnership to develop first Romanian national palliative care plan
5.8 Kochipallcon - XV international conference of the Indian Association
of Palliative Care (IAPC)
5.9 Dr Robert Twycross receives lifetime achievement award |
6. Policy
6.1 Aging, pain, long-term care and the prescribing of analgesics
6.2 Call for psychologists to participate in head and neck cancer survey
6.3 International Association for the Study of Pain (IASP) in developing
countries
6.4 New WHO Access and Control newsletter
6.5 UK consortium on HIV and AIDS and International Development Position
paper on Care and Support |
7. Funding
7.1 2008 Developing Countries Education Grant
7.2 Winston Churchill Memorial Trust Fellowships - 2009 round opens 2
June |
8. Disease information
8.1 WHO burden of disease data |
9. Publication highlights
9.1 HIV & AIDS services worldwide
9.2 Palliative Care Formulary (third edition)
9.3 Alliance in Spanish
9.4 United Against AIDS
9.5 Films about hospice care: Emanual Hospice, Romania |
10. News from Help the Hospices' international team and Hospice Information
10.1 Help the Hospices' International Grants
10.2 Global Advocacy Project supported by the Open Society Institute (OSI)
10.3 Global Fund workshop
10.4 Global Fund - call for proposals
10.5 Voices for Hospices - Alex Williams retires
10.6 About Hospice Information
10.7 Hospice Information Bulletin
10.8 Hospice Information: welcome to new subscribers |
11. World Hospice and Palliative Care Day
11.1 World Hospice and Palliative Care Day |
|
12. Highlights from the world of palliative care for children 12.1
New groundbreaking film on growing up with a life-limiting condition |
13. Conferences, meetings and events
International events
Regional events |
14. Web watch
14.1 Indian Association of Palliative Care - new website |
15. Hot tips
15.1 Patient Education Information |
16.
Notice board
16.1 Hospice Malaysia - a tribute to hospice chairman
16.2 Florence Nightingale Foundation commemoration service 2008
16.3 Come to Esher... and support palliative care in Sierra Leone |
1. Breaking news |
1.1 International Journal of Palliative Nursing Awards 2008 – Dr Mary Vachon
receives lifetime achiever award
|
|
Dr Mary Vachon - nurse, clinical sociologist, psychotherapist, researcher and
educator – received a lifetime achiever award for the contribution she has made
to evidence-based palliative care at a ceremony hosted by International Journal
of Palliative Nursing on 7 March, at Café Royal, London. Throughout her career
Dr Vachon has delivered over 1,500 lectures around the world on topics related
to bereavement, occupational stress, life-threatening illness, palliative care,
and survivorship and spirituality. She has also published over 160 scientific
book chapters and articles and is on the editorial boards of Palliative Medicine
and Psychosocial Oncology.
Nurses, social workers and educationalists from UK hospices, palliative care
teams and two motor neurone disease projects were also honoured at the Awards
which reflected their creativity and excellence in multidisciplinary teamwork,
development, education and non-cancer symptom management.
This annual award, sponsored this year by Macmillan Cancer Support and
ProStrakan, highlights and rewards excellence in evidence-based palliative care.
More information on individual winners is available at:
http://www.ijpn.co.uk/
|
|
Back to top |
2. Dates to celebrate |
2.1 Call for pain treatment and palliative care to be promoted to level of
Fundamental Human Rights
|
|
Eduardo IIbarra, President of the Latin American Federation of Associations
for the Study of Pain (FEDELAT) requests support for a motion put forward in a
letter dated 1 February 2008 to the Hon. Ban Ki-moon, Secretary-General of the
United Nations and to the High Commissioner on Human Rights, Hon. Louis Arbour,
calling for the recognition of pain treatment and the provision of palliative
care to be promoted to the level of Fundamental Human Rights. The letter calls
for the proclamation to be made on 10 December on the 60th anniversary of the
Universal Declaration of Human Rights. Supporters of the motion can fill out a
petition form at:
http://www.pain-initiative-un.org/ |
|
Back to top |
3. Links & opportunities - Job
vacancies
|
3.1 UK Social worker seeks social work contacts in Australia, New Zealand,
USA or Canada
|
|
I am an experienced social worker and have been employed for the past three
years, as a social worker in a hospice for adults in Stoke on Trent, England.
The international dimension to social work is an area that I am very interested
in. I would welcome the opportunity to visit a hospice that employs social
workers in either Australia, New Zealand, USA or Canada. This would be a short
visit, to review and learn how other social workers work within a palliative
care setting. Please contact Tina Forrester at:
tinaforrester@btinternet.com |
3.2 Hospice in the West, Krugersdorp, South Africa, seeks Nursing Services
Manager and Social Worker
|
|
Hospice in the West, Krugersdorp, South Africa is seeking
Nursing Services Manager and Social Worker. Both posts require fluency in
Afrikaans and English.
For more information contact Helene Pieters (Nursing Manager) or Marisa Wollheim
(Director). Email:
westrandhospice@absmail.co.za |
3.3 Centre for African Family Studies /
Centre d’Etudes de la Famille Africaine (CAFS), Kenya and Togo, advertises
the following posts:
|
|
Team Leader (Training and Technical Assistance); Team Leader (Finance and
Support Services); Organisation Development Specialist (two posts); Knowledge
Manager Specialist and Sexual and Reproductive Health and HIV&AIDS Specialist.
The mission of the Centre for African Family Studies (CAFS) is to improve lives
of African families through skills development, knowledge management, and
technical assistance in health land development. Most posts are based in Kenya;
one in Togo. For more information see:
http://www.cafs.org |
|
Back to top |
4. Newsbites
|
4.1 New guidelines for home-based palliative care services
|
|
The Indian Association of Palliative Care and CanSupport have published
Guidelines for home based palliative care services. The guidelines include
sections on the principles, components and the ethical issues of providing a
home based service. The publication lists contact details for palliative care
organisations in India, topics for training, and contains useful templates for
assessments and consent letters. Copies of the guidelines can be obtained from
Jolly Verma at:
cansup_india@hotmail.com. The price is Rs.250/- plus postage. |
4.2 Plans for the Cicely Saunders Institute of Palliative Care announced
|
On 5 February 2008, UK Prime Minister Gordon Brown unveiled plans for the new
Cicely Saunders Institute of Palliative Care:
http://www.cicelysaundersfoundation.org/
scheduled to open in autumn 2009. The Institute, located at King’s
College London Denmark Hill Campus, is among the first international academic
establishments in the world to focus specifically on palliative care research
and teaching linked to clinical care. Speaking at the event the Prime Minister
pledged “to do more as government to support palliative care in this country.”
Excerpts from his speech including an introduction by Prof. Rick Traynor,
Principal of King’s College London, and Irene Higginson, Professor of Palliative
Care and Policy, can be viewed on the Downing Street
YouTube channel. |
4.3 New Reports from Measure Demographic and Health Studies (DHS)
|
|
MEASURE DHS has announced new reports on
Tanzania, Rwanda, Peru, and Nepal. For more information and to download free
copies see:
http://www.measuredhs.com/ |
|
Back to top |
5. Hospice and palliative care in practice
|
5.1 REPACARO – new Romanian project on palliative care
|
|
A new Regional Expertise Centre on Palliative Care in Romania - REPACARO opened
in the Olt region in January 2008. The Centre will deliver information,
consultancy and training to palliative care at home teams. The Centre, which
received a grant from the Netherlands Ministry of Foreign Affairs, is the result
of co-operation between the Romanian Ministry of Health, the Health Insurance
House and the College of Physicians. For more information visit:
http://www.repacaro.ro |
5.2 Bridging the Morphine Gap: palliative care in India on BBC Radio 4
|
“It was like hearing someone being tortured. She was not like a human being: she
could only think about the pain. A few million people in India go through that
agony. At least two million people with cancer and many millions with other
diseases who simple suffer and suffer, and their whole family suffers with them,
until death eventually relieves them of the misery. Some people commit suicide
because of the pain, sometimes people come and beg please kill my husband or my
mother or my son, I can’t bear to see this. I think it’s dreadful what people
have to go through which converts them from human beings to some sort of
animals.” - Dr MR Rajagopal, palliative care physician, Trivandrum.
Dr Rajagopal and many other well-known palliative care workers in India
contributed to this inspiring radio programme that was broadcast on BBC Radio 4
on 3 March. Mukti Jain Campion investigated how, despite producing most of the
world’s medical morphine, India’s own people have virtually no access to it. The
long-established twinning between Severn Hospice, UK, and Karunashraya Hospice
in Bangalore was also featured sending out a very strong message for the shared
learning and benefits that come to each ‘twin’.
Producer: Chris Eldon Lee. A Culture Wise production for
BBC Radio 4. The programme is online for a limited period.
Useful links:
http://www.palliumindia.org and
http://www.karunashraya.org/
|
5.3 Post-election violence impacts on palliative care in Kenya
|
|
An article published in Africa Science News Service on 14 February describes the
difficulties facing palliative care patients and services owing to the recent
unrest in Kenya. Home visits to patients have been disrupted and the situation
is compounded by the displacement of large sections of the population into camps
for internally displaced persons. Dr Zipporah Ali of the Kenya Hospices and
Palliative Care Association reports that the number of patients attending clinic
has drastically reduced and concern is growing that patients are suffering as
they are cut off from services. Two patients at Eldoret Hospice cannot be traced
after they were displaced, while Dr Julius Onyango, CEO of the Kisumu Hospice,
describes how he was unable to get to the hospice after roads were barricaded in
the city, effectively cutting off care-givers and patients. Nairobi Hospice
reports that patients are wasting away because they are not eating properly
while others break down emotionally when they narrate what they have been
through and what they have seen others go through - they talk of the pain they
have suffered due to not being able to access their drugs on time.
http://africasciencenews.org/ |
News from the National, Pan-national and
Regional Associations
|
5.4 African Palliative Care Association (APCA)
|
|
Dr Julia Downing, Deputy Executive Director,
APCA writes: APCA (http://www.apca.co.ug/)
has just completed a three-day workshop on Advocacy for Palliative Care in
Africa: a focus on essential pain medication accessibility in Southern Africa.
The meeting was held from the 27-29 February in Windhoek Namibia, funded
through USAIDS Regional HIV/AIDS Program, and with technical support from WHO,
PPSG, OSI and FHSSA/NHPCO. It was attended by participants from Botswana,
Lesotho, Mozambique, Namibia, Swaziland and Zimbabwe. The teams from each of
these countries included participants who were willing to advocate for policies
that make palliative care and essential palliative care medicines, including
opioids, available and accessible in their respective countries. Such
individuals included: Senior / Chief pharmacists, Drug regulatory authorities;
Pharmacy Board / Council representative; Ministry of Health clinical services
and / or policy personnel and palliative care providers. The workshop was opened
by the Minister of Health and Social Services Mr. Richard Kamwi and the US
Ambassador Dennise Mathieu who both pledged their support for the development of
palliative care and ensuring access to appropriate medications.
The first day of the workshop was also attended by a wider group of stakeholders
from Namibia and issues discussed such as why we need palliative care, pain
control in adults and children, access to medications and the essential
medications for palliative care. In day two the country teams presented the
situation in their countries with regards to palliative care and in particular
access to analgesics. Following these presentations and some information as to
how to address some of the challenges and develop strategic plans, the teams
worked together with technical input to develop individual country strategies
for how to improve access to essential medicines for palliative care and in
particular opioids. These country strategies were shared and APCA will be
following up the teams at regular intervals and supporting them in the
implementation of these strategies. This was the third in a series of workshops
addressing such issues, following on from one for East Africa in Entebbe 2006,
West Africa n Ghana 2007 and now Southern Africa in Namibia 2008. |
European Association for Palliative Care (EAPC)
|
5.5 EAPC pre-conference seminar - 24 - 27 May 2008
- Pain, cachexia and depression in palliative care - genetics,
assessment/classification and treatment
|
|
The organising
committee of the EAPC Research Forum 2008 invite you to join fellow researchers
and practitioners on board the coastal express Hurtigruten and meet the
world’s leading experts in pain, cachexia and depression in palliative care.
After the pre-conference sessions, delegates will return to the conference city
of Trondheim by plane. The seminar is organised jointly by the EAPC Research
Network and the European Palliative Care Research Collaborative (EPCRC), a
multinational EU funded project (http://www.epcrc.org). The seminar will be CME accredited. You can download full
details of the pre-conference seminar at:
http://www.eapcnet.org/research2008,
together with full information on the rest of the 5th Research Forum
2008 conference. |
5.6 Calling all National Associations in Europe: the Budapest Commitments –
a framework for palliative care development
|
|
EAPC invites all representatives of national associations in Europe to submit
their commitments and priorities to develop palliative care in their country or
region. For further information and to download the Budapest Commitments
template, please visit the
EAPC website. |
5.7 Partnership to develop first Romanian national palliative care plan
|
|
[Source: press release, Ministerul Sanatatii, Hospice Casa
Sperantei and Federatia Asociatiilor Bolnavilor de Cancer, March 2008].
The Ministry of Health (MoH), Hospice Casa Sperantei Foundation (HCS) (http://www.hospice.ro)
and the Federation of Associations for Cancer Patients (FABC) have agreed to
sign a partnership with a view to developing the first National Palliative Care
Plan in Romania, being a component of the National Cancer Plan. Some of the key
terms of the agreement include: commitment from the MoH to name a person
responsible for the definition and implementation of the national plan; to
provide specialist expertise in public health, health service economics, service
management, psychology, information systems, communications, multi-disciplinary
working etc; to set up a sub-committee for palliative care within the Oncology
Commission (an HCS representative will sit on the Commission); to support HCS in
the running and accreditation of the national resource centre and hospice
education centre and to include the National Palliative Care Plan in the
National Cancer Plan in the public health system. HCS, working closely with the
MoH representative, will be responsible for monitoring the implementation of the
plan; informing and consulting with other palliative care organisations and the
Oncology Commission and evaluating the needs of palliative care services at
national level. HCS will also contribute to public and professional education. |
5.8 Kochipallcon - XV International Conference of the Indian Association of
Palliative Care (IAPC)
|
|
Dr Biju Raghavan, Organising Secretary, writes:
Quality and Coverage was the theme of IAPC’s annual conference held in Kochi,
Kerala, 8-10 February 2008 and hosted by the Consortium of Pain and Palliative
Care Units in Ernakulam District. Can “quality of care” be discussed only in the
context of developed countries? Is it too much of a luxury in a developing
country? This issue was discussed during the conference plenary with more than
400 participants. It was unanimously concluded that quality was not a luxury,
but an essential requirement during the early days of palliative care
development in any country.
Attempts to address this issue were initiated by the NGO, Pallium India, in
2006. The US-based National Palliative Care Organization (NHPCO) offered
financial aid to the project and Dr Stephen Connor gave his expertise and time.
Following the drafting of an action plan in Mumbai in February 2007, the group
met again in Kochi in February 2008 and prepared a draft document for National
Standards in Palliative Care, which formed the basis of discussion at the
conference plenary. A final document, incorporating suggestions from the
plenary, was submitted to IAPC for consideration and may be viewed on Pallium
India’s website at
http://www.palliumindia.org (follow the links National Standards for
Palliative Care in India). If you’re interested in quality improvement or in
national standards, please review and send your comments to
pallium.india@gmail.com for submission to the IAPC. |
|

|
|
Panel discussion at the plenary: (left to right): Dr Stephen R. Connor, Dr
Maryann Muckaden, Dr Suresh Reddy and Dr MR Rajagopal
|
5.9 Dr Robert Twycross receives lifetime achievement award
|
|
The palliative care community of India honoured Dr Robert
G.Twycross with a citation for his exceptional contribution to palliative care
in India. It was presented to him by Dr Sukdev Nayak, president of IAPC, during
the conference. Dr Twycross’ contributions to the Indian palliative care scene
span over 15 years. He frequently visited India twice a year, travelling
throughout the country, lecturing and mentoring. Often he would lecture in other
countries to raise funds for his work in India. Most palliative care physicians
in India are either his students or his students’ students. He gave the
copyright of his book Introducing Palliative Care free so that a low cost
edition could be produced in India for just $2.5.
Reproduced with kind permission of Pallium India's e-newsletter, February 2008. |
|
Back to top |
6. Policy
|
6.1 Aging, pain, long-term care and the prescribing of analgesics
|
|
Nursing homes and other long-term care facilities are becoming the principal
place of care and the site of death of older adults in the developed world. Two
recent issues of Cancer Pain Release, the publication of the WHO Collaborating
Center for Policy and Communications in Cancer Care, review the challenges
inherent in providing adequate pain control to elderly residents in long-term
care.
In one, Joan M. Teno, Professor of Community Health and Medicine and Associate
Director of the Center for Gerontology and Health Care Research at Brown
University Medical School in Providence, Rhode Island discusses aspects of the
culture of nursing homes that impede proper pain management. In the other, the
physiological changes associated with aging, polypharmacy, and the prescribing
of inappropriate medications in nursing homes are described as barriers to
proper pain care in the vulnerable elderly.
The two publications include links to recent resources on pain management in
long-term care as well as abstracts of peer-reviewed articles about pain
management for older patients in long-term care settings. To subscribe and
receive print copies, please visit the WHO Cancer Pain website
http://www.whocancerpain.wisc.edu/ |
6.2 Call for psychologists to participate in head and neck cancer survey
|
|
The first version of the International Classification of Functioning core sets
for head and neck cancer was adopted by an international consensus conference in
November 2007. With the core set it will be possible to carry out an
internationally uniform classification of patients with head and neck cancer.
Before they can be used routinely they have to be validated. Psychologists with
over five years’ experience in the treatment of patients with head and neck
cancer (HNC) and fluent in English who are interested in participating in the
survey should contact:
Sven.Becker@med.uni-muenchen.de |
6.3 International Association for the Study of Pain (IASP) in Developing
Countries
|
|
A report by the IASP in Developing Countries task force published in November
2007, presents the results of a survey conducted in 49 countries. The section on
cancer pain and opioid use, shows that the percentage of patients receiving
opioids varies widely – less than 10 per cent in parts of Africa and the Indian
sub-continent. The report and summary are available at:
http://www.iasp-pain.org. |
6.4 New WHO Access and Control Newsletter
|
|
Produced by the World Health Organization, Department of Medicines Policy and
Standards, the newsletter provides the latest information from WHO on issues
relating to access to medicines controlled under the international drug treaties
and an evaluation of substances for their dependence producing properties. The
newsletter will be published irregularly about once a month – to subscribe send
an email to:
accessandcontrol@who.int |
6.5 UK consortium on HIV and AIDS and International Development position
paper on Care and Support
|
|
The UK consortium on HIV and AIDS and International Development are producing a
position paper on Care and Support. This draft paper outlines the key areas that
care and support for people with HIV and AIDS requires. It also provides
suggestions of indicators and recommendations for policy makers. If you would
like to comment on this paper please contact:
c.morris@helpthehospices.org.uk |
|
Back to top |
7. Funding
|
7.1 2008 Developing Countries Education Grant
|
|
As part of the International Association for the Study of Pain (IASP) Developing
Countries Project this grant of up to US$10,000 addresses the need for improved
education about pain and its treatment in developing countries. To qualify, the
principal organiser must be based in a developing country and must be an IASP
member. Application deadline: 1 June 2008. Grant deadlines and application forms
are available online at
http://www.iasp-pain.org/grants. |
7.2 Winston Churchill Memorial Trust Fellowships – 2009 round opens 2 June
|
|
The Winston Churchill Memorial Trust offers Fellowships to British Citizens
resident in the UK to acquire knowledge and experience abroad. Many people
involved in palliative care and bereavement – nurses, doctors, social workers,
counsellors, researchers, therapists - have received fellowships in the past
enabling them to gain a better understanding of their field in many countries of
the world. There is usually a wide selection of categories – register your
interest now online at:
http://www.wcmt.org.uk to receive further information.
[Seven former Churchill Fellows, all of whom are working in palliative care,
describe their experiences in the Hospice Information Bulletin, vol.5, No. 4,
July 2007].
|
|
Back to top |
8. Disease information
|
8.1 WHO burden of disease data
|
|
The shape of the global causes of
death, an article by
Anna Barford and Danny Dorling, contains cartograms, based on World Health
Organization (WHO) Burden of Disease data, showing the geographies of medicine,
health care, disease and death. Maps include human poverty, Alzheimer’s and
dementia deaths, and trachea bronchus and lung cancer deaths information.
Includes 17 cartograms. The article is published in the International Journal
of Health Informatics and can be downloaded free from Biomed Central at
http://www.biomedcentral.com |
|
Back to top |
9. Publication highlights
|
9.1 HIV & AIDS services worldwide
|
|
The 2008 directory, published by NAM, lists over 2,000 key HIV/AIDS agencies in
184 countries with contact details listed in English, French, Spanish and
Portuguese. The directory comes as both a book and searchable CD. The CD
contains additional resources including links to epidemiological fact sheets,
HIV and AIDS in Practice and 15 booklets from NAM’s patient information series.
For more details, please contact NAM on +44 (0)20 7840 0050; fax: +44 (0)20 7735
5351; email:
info@nam.org.uk or
http://www.aidsmap.com. The 2008 directory costs £24.95 (p&p Europe £5, rest
of world £10). |
9.2 Palliative Care Formulary (third edition)
|
|
PCF3, the expanded third edition incorporating numerous important updates and
new data, edited by Robert Twycross, Andrew Wilcock, is now available at
http://www.palliativedrugs.com or
http://www.palliativebooks.com, price £40.00. |
9.3 Alliance in Spanish
|
|
An electronic edition of Alliance magazine (carrying news and analysis of the
latest developments in philanthropy and social investment worldwide) is to be
published in Spanish for free distribution throughout Latin America. Alliance
will also be collecting news on philanthropy and social investment in Latin
America. For more details see
http://www.alliancemagazine.org |
9.4 United Against AIDS
|
|
Strategies of Hope have released a new DVD/video United Against AIDS which tells
the story of The AIDS Support Organisation (TASCO) in Uganda. An eight minute
clip can be viewed on
http://www.stratshope.org. The DVD/video and accompanying book written by
Peter Ssebbanja are available from TALC, P.O. Box 49, St Albans AL1 5TX, U.K.
Tel.: +44 1727 853869. Email:
info@talcuk.org.
Website:
http://www.talcuk.org.
|
9.5 Films about hospice care
|
|
It’s often hard to engage public interest in what hospice care really means,
especially when you are just developing a new hospice or palliative care service
and have few resources to demonstrate your work. Many people ask us how to
obtain films that might be helpful. We suggest you look around and see what
other local services have produced. Or use this space to tell us about your film
so that others can share!
Here we bring you news of a new film from Romania:
Hurting hearts healing hands is the story of Emanuel Hospice in
Romania. It was born out of a vision to bring hospice care to the people of
Oradea with life-limiting illnesses. The documentary introduces some of the
people whose lives have been deeply affected by the team of dedicated
professionals who work at the hospice. The DVD, Hurting hearts healing hands,
28.30 minutes, is available £10 incl. p & p from Eurovangelism, Tel: +44(0)117
961 5161. More information about the work of Emanuel Hospice at
http://www.emanuelhospice.org (in English and Romanian). |
|
Back to top |
10. News from Help the Hospices' international team
and Hospice Information
|
10.1 Help the Hospices' International Grants
|
|
Help the Hospices is running a series of international grants programmes
throughout the year for hospice and palliative care. Further announcements will
be made through Worldwide Hospice and Palliative Care Online and please keep
checking the
international grants section of our website. |
10.2 Global Advocacy Project supported by the Open Society Institute (OSI)
|
|
This project is working with the Global Fund for AIDS, TB and Malaria and
related structures to develop proposals which include palliative care, and
produce evidence for future funding rounds. In three countries there will be
specific collaboration to ensure proposal development. There will also be
related global advocacy to global health institutions such as UNAIDS and WHO and
specific advocacy linked to World Hospice and Palliative Care Day. The project
is working with the Worldwide Palliative Care Alliance Policy Advocacy
workgroup. As part of the project, Help the Hospices will host a meeting at the
Mexico AIDS conference in August to provide input to the Global Fund and support
palliative care participants. Help the Hospices is currently writing up a
toolkit on accessing the Global Fund and a report on the Global Fund’s support
to palliative care.
As part of this work, Help the Hospices will be working to raise the issue of
palliative care in several key forums, including the Global Fund's Partnership
Forum, the PEPFAR implementers’ meeting and major palliative care conferences.
In 2009 the project will continue to work closely with the Fund’s secretariat
and board as it defines the strategy. In particular, we wish to identify
ambassadors and policy papers to support palliative care that will provide
information about the impact of palliative care and enable facilitative legal
and policy frameworks. For more information please contact Nick Pahl at:
nickpahl@btinternet.com
|
10.3 Global Fund workshop
|
|
Help the Hospices, with support from the Open Society Institute, is holding a
workshop in Mexico prior to the Mexico International AIDS Conference on 2
August, 2008 to support hospice and palliative care services accessing Global
Fund funds. The workshop is an official, affiliated event to the AIDS
conference. All costs of attending the workshop will be fully funded. If you
would like to express an interest in taking part in this workshop or would like
more information, please contact
c.morris@helpthehospices.org.uk
|
10.4 Global Fund – call for proposals
|
|
The Global Fund has issued its call for proposals for 2008 which you can see on
the website
http://www.theglobalfund.org. The Global Fund is particularly encouraging
applications which include health system strengthening. Contact your country
coordinating mechanisms to get palliative care included in the national
proposal. If you would like support or information on any area of the Global
Fund, please contact Claire Morris at
c.morris@helpthehospices.org.uk
|
10.5 Voices for Hospices – Alex retires
|
|
Alex Williams, who did such a fantastic job at coordinating Voices for Hospices
for several years, has now retired. Claire Morris will be the main contact for
the event which will now be coordinated by Help the Hospices. Voices for
Hospices will take place on World Hospice and Palliative Care Day (http://www.worldday.org)
every two years (the second Saturday in October). The next Voices event will
take place on 10 October, 2009 and the Voices for Hospices website will be
updated shortly. The commemorative brochure for 2007 will also be available
soon.
If you have any suggestions as to how Help the Hospices could support you
further with your Voices for Hospices’ activities, please contact: Claire Morris
at Tel: +44(0) 20 7520 8250; Fax: +44(0)20 7278 1021;
Email:
voices@helpthehospices.org Web:
http://www.voicesforhospices.org
|
10.6 About Hospice Information
|
|
Hospice Information offers a practical means of networking with colleagues at
regional, national and international levels, helping people across the world to
access the tools and training that enable them to develop their services and
practice. We offer a personal enquiry service, UK and international directories,
online directory of education and training, online job search, email and print
publications and a free subscription service. We’re delighted to welcome
visitors by appointment at our offices at Help the Hospices or St Christopher's
Hospice. Please visit the Hospice Information website:
http://www.hospiceinformation.info or contact us at:
info@hospiceinformation.info
|
10.7 Hospice Information Bulletin
|
|
Do you get to see our quarterly print magazine, Hospice Information Bulletin?
Why not check out a back number on the Hospice Information website or take out a
free subscription - see below. Better still, if you've got an interesting story
to share why not submit an article for publication? If it's published you will
receive a voucher which is exchangeable for £50 worth of Help the Hospices'
publications. Please contact
avril@hospiceinformation.info if you'd like to contribute. |
10.8 Hospice Information: welcome to new subscribers
|
|
Our subscription scheme enables any individual or organisation working in
palliative care to receive regular information updates free of charge. The
scheme is flexible too so you can choose to receive any or all of the following:
Hospice Information Bulletin; Bulletin Alert (email contents preview);
electronic news resources on UK and international news; eChoices (email listing
of courses and conferences) and a range of discounts from other palliative
care-related services. We're in touch with palliative care workers in well over
100 countries of the world. Welcome all new subscribers and, in particular, to
our very first contact with colleagues in Antigua, in the Caribbean. Thanks to
one of our UK readers, we were put in touch with members of St John Association
Hospice and Palliative Care Service, which is in the very early stages of
development in St John’s, Antigua. We are now delighted to welcome Mrs Grace
Cephas-Lewis, Chair, and Mrs Agnes Meeker, Secretary. We hope very much to learn
more about their plans in a future issue of WHPCO. Details of this new
initiative are published in our international online directory at:
http://www.hospiceinformation.info
If you'd like to feel part of the wider hospice and palliative care community
please join us! Please contact:
info@hospiceinformation.info |
|
Back to top |
11. World Hospice and Palliative Care Day
|
11.1 World Hospice and Palliative Care Day - 11 October 2008
|
|
This year the day is on 11 October 2008. World Hospice and Palliative Care Day
is a unified day of action to celebrate and support hospice and palliative care
around the world. The theme for World Day 2008 is "Hospice and palliative care:
a human right". For more information, please contact Claire Morris,
c.morris@helpthehospices.org.uk or see
http://www.worldday.org |
|
Back to top |
12. Highlights from the world of palliative
care for children
|
12.1 New groundbreaking film on growing up with a life-limiting condition
|
|
'Talk About Change' a film by young people with life-limiting conditions is now
available on DVD. The DVD comes with written guidelines and is an essential
resource for carers, families, young people and everyone involved in palliative
care. It is based on in-depth interviews with young people who talk about
transition and topics such as relationships, sexuality, independence and the
journey from childhood through the teenage years and into adulthood. The film
was produced by The Kosh arts charity and supported by ACT (Association for
Children's Palliative Care). The DVD costs £10 per copy; to order please contact
The Kosh at:
info@thekosh.com To view a trailer visit:
http://www.talkaboutchange.co.uk |
|
Back to top |
13. Conferences, meetings and
events |
|
Here's a small selection of forthcoming events extracted
from eChoices, our online directory of education and training. For
more information please visit the training area of the Hospice Information
website. If you are a subscriber to Hospice Information we will deliver
eChoices direct to your desktop every quarter. Please contact Anne Mason
if you would wish to receive eChoices, or advertise your events
free of charge -
echoices@hospiceinformation.info |
International events |
April 11-12, 2008 – first annual international Continuing
Medical Education conference (CME), Addis Ababa, Ethiopia
This conference intends to establish an enduring forum and structure within
which medical and public health professionals present and exchange knowledge and
experience, and their application to health care provision and disease
prevention. Please contact:
confregistration@ihdn-uk.org |
May 21-22, 2008 – the 5th Institution of Engineering and
Technology international seminar on appropriate healthcare technologies for
developing countries, London, UK
Please visit:
http://www.theiet.org/aht |
May 22-25, 2008 – the 8th international workshop on
resource mobilisation, Kuala Lumpur, Malaysia
This conference will focus on providing training in all aspects of resource
mobilisation and sustainable fundraising techniques. Please visit:
http://www.resource-alliance.org/iwrm |
May 28-31, 2008 - 5th Research Forum of the European
Association for Palliative Care (EAPC), Trondheim, Norway
For more details please visit the
EAPC website (for details of the pre-conference seminar see also
5.5). |
June 6, 2008 - International Health Links Conference,
London, UK
Further details available shortly at
http://www.thet.org.uk |
June 18-19 and 25-26, 2008 - Advanced courses in pain and
symptom management, Newcastle and Nottingham, UK
An annual update for senior palliative care professionals run by Sir Michael
Sobell House Hospice. These courses attract UK and international audiences.
Please visit:
http://www.sobellhospiceoxford.org or email:
ssc@orh.nhs.uk |
July 7-9, 2008 – Cardiff University, ACT and ACH
Palliative Care Forum’s 4th International Conference in Paediatric Palliative
Care, Cardiff, UK
The theme of this conference is ‘speaking of dying: what are we saying?’
Abstract deadline – April 30, 2008. Please contact: Su Hayward-Lewis; Email:
Haywardlewis@cardiff.ac.uk. For more details and to apply on-line please
visit the
Cardiff University website. |
August 17-22, 2008 - 12th World Congress on Pain, Glasgow,
Scotland
Sponsored by The International Association for the Study of Pain. Please
visit the
IASP
website. |
September 23-26, 2008 - 17th International Congress on
Palliative Care, Montréal, Canada – (Trilingual: English, French and Spanish)
Presented by the Palliative Care Division of the Departments of Medicine and
Oncology of McGill University, this year’s special focus will be on palliative
care as a basic human right and how to develop and support initiatives in
Africa, Asia and Latin America. Simultaneous interpretation of selected
sessions, including all plenaries, into Spanish and French. Poster abstracts may
be submitted until May 28, 2008. Early registration deadline: March 24, 2008.
Please visit:
http://www.pal2008.com or call +1 450 292 3456 ext. 227. |
10-14 November 2008 - Multi-Professional Week, St
Christopher's Hospice, London, UK
An intensive week of learning and updating in clinical palliative care. 35
participants from around the world work together. Attendees must have excellent
English. Bursaries A limited number of bursaries are available for overseas
colleagues from developing countries. The deadline for bursary applications is 1
July. Please visit::
http://www.stchristophers.org.uk/education or email:
education@stchristophers.org.uk |
Regional events |
April 3, 2008 – Cultural diversity in palliative care,
Douglas Macmillan Hospice, UK
Topics include: the challenge of palliative care in developing countries –
reflections from the field; older Chinese people’s view about cancer and end of
life; death and bereavement across cultures. Please visit:
http://www.dmhospice.org.uk or email:
education@dmhospice.org.uk |
April 8-9, 2008 – NHPCO’s 23rd management and leadership
conference: advocacy in action – mobilising people and organisations to lead
change, Washington, USA
Please visit:
http://www.nhpco.org/mlc2008 |
April 24, 2008 - Giornata Italiana, St Christopher’s
Hospice, Londra
Augura il benvenuto a tutti i colleghi italiani che desiderano particepare a
una giornata di studio intensivo in lingua italiana nel nostro ‘hospice’. I
relatori parleranno in italiano o tramite un interprete. Website:
http://www.stchristophers.org.uk/giornataitaliana
Email:
education@stchristophers.org.uk |
April 29-May 1, 2008 - the 7th palliative care congress,
Glasgow, Scotland
Organised jointly by The Palliative Care Research Society and The RCN
Palliative Nursing Group and The Association for Palliative Medicine of Great
Britain and Ireland. Please visit:
http://www.pccongress.org.uk/ |
June 2, 2008 – Modernising cancer nursing education,
Brussels, Belgium
Train the trainers event for specialist nurse educators to update on the
developments within the European Union, in relation to the Bologna agreement.
Please contact:
eons.secretariat@skynet.be or visit:
http://www.cancerworld.org/eons |
September 1-3, 2008 – 3rd biannual Palliative Care
Association of Uganda conference on ‘palliative care across all ages: from
children to old people’ Kampala, Uganda
Topics include: advocacy for all; palliative care for special groups;
organisational development. Abstract deadline – June 30, 2008. For more
information please email PCAU Secretariat:
pcau@apca.co.ug |
Octobre 9-10 2008 Colloque Francophone: Qu’est-ce qui
marche bien en soins palliatifs? St Christopher’s Hospice, Londres, G-B
Ces deux journées à St Christopher’s vous offre l’occasion de découvrir
ensemble les principes et les pratiques qui marchent vraiment bien en soins
palliatifs. Contactez:
education@stchristophers.org.uk
http://www.stchristophers.org.uk/education |
October 26-29, 2008 – The 2008 Canadian Hospice Palliative
Care Conference: crossing the bridge to knowledge and sharing, Prince Edward
Island, Canada
A chance for hospice palliative care professionals, volunteers, and family or
informal caregivers to share experience and expertise on a national platform.
Please visit:
http://www.conference.chpca.net |
Keep the dates in 2009 and 2010
Start thinking about your abstracts! |
January 16-17, 2009 – 1st International conference on
public health and palliative care, Kerala, India
Abstract deadline: August 1, 2008. Please contact: Dr Suresh Kumar at:
drsuresh.kumar@gmail.com or visit:
http://www.pubhealthpallcare.in/ |
February 13-19, 2009 – Freedom from pain – 16th
international conference of the Indian Association of Palliative Care, New Delhi,
India.
This conference will include the Worldwide Palliative Care Alliance's (WPCA)
fourth worldwide summit on February 11-12, 2009 and a one-day workshop on
Interventional Pain Management Techniques on February 12, 2009.
Please visit:
http://www.iapcon2009.org/ or email:
iapcon2009@gmail.com |
February 11–14, 2010 - 17th International Conference of
the Indian Association of Palliative Care, Trichirappalli, India
Please contact: Dr Mohanasundaram Thiagarajan at:
mohs55555@hotmail.com |
|
Back to top |
14. Web watch
|
14.1 Indian Association of Palliative Care - new website
|
|
The Indian Association of Palliative Care (IAPC) website, though not yet
officially launched, is now online at:
http://www.palliativecare.in/ The website contains information about IAPC
and its mission as well as information about courses and training programmes.
The site also includes links to the addresses of Palliative Centres in India and
to the Indian Journal of Palliative Care. |
|
Back to top |
15. Hot tips
|
15.1 Patient Education Information
|
|
Our thanks to Mary Louise Carr of the American Academy of Hospice and Palliative
Medicine (AAHPM) for alerting us to this new resource for patients.
The AAHPM has introduced a new section to its website featuring patient
education materials on hospice and palliative care at:
http://www.aahpm.org.
Written by physicians, nurses, pharmacists and other healthcare providers the
materials provide information for patients facing serious or life-threatening
conditions, alongside other websites providing helpful information for patients. |
|
Back to top |
16. Notice board
|
16.1 Hospis Malaysia – a tribute to hospice chairman
|
|
We record with sadness the death on 28 November, 2007, of Dato’ Francis Huang
Chang Hsun, chairman of Hospis Malaysia since 2002. Dato’ Huang’s long
involvement with the hospice began in 1994. A moving tribute to his significant
role at the hospice appears in Hospis Malaysia’s online newsletter, Berita
Hospis, 3rd issue 2007 at:
http://www.hospismalaysia.org. Dato’ Dr Peter Mooney, the founding chairman
of Hospis Malaysia, has been appointed chairman.
Note: A
country report of hospice-palliative care development in Malaysia has just
been posted on the website of the International Observatory on End of Life Care. |
16.2 Florence Nightingale Foundation commemoration service 2008
|
|
This year’s Service to commemorate the life and work of Florence Nightingale
will be held in Westminster Abbey, London, at 6.15pm on Wednesday, 14 May, 2008.
This Service also celebrates the professions of nursing and midwifery and all
staff, both qualified and unqualified working in these services, are welcome.
During this year’s Procession of the Lamp, the lamp will be carried by a Scholar
of the Florence Nightingale Foundation and escorted by student nurses from the
School of Health and Social Care, North East Wales Institute of Higher
Education.
Admission to the ceremony is strictly by ticket only. Tickets are free and will
be available during March and April on a first come first served basis. To
apply, please write to Pam Mummery at:
admin@florence-nightingale-foundation.org.uk and include your full postal
address. Or use the pro-forma on the website:
http://www.florence-nightingale-foundation.org.uk (under Commemoration
Service 2008). |
16.3 Come to Esher… and support palliative care in Sierra Leone
|
|
The UK Friends of The Shepherd’s Hospice, Sierra Leone, are holding a Quiz Night
on Friday, 25 April, at 7.30pm at Princess Alice Hospice in Esher. The UK
charity is now completely funding The Shepherd’s Hospice community palliative
care team and are facing the funding of drugs as the local three year funding
project has come to an end. Please contact Sheila Hurton if you would like to
support this event:
shurton.vfh@btinternet.com |
|
Back to top |