| Title | Description | URL |
| AARP | Founded in 1958, AARP is a nonprofit, nonpartisan membership organization that helps people 50 and over improve the quality of their lives.
| http://www.aarp.org/aarp/About_AARP/ |
| Academy of Medical-Surgical Nurses | The only national professional nursing specialty organization dedicated to adult health/medical-surgical nursing. | www.medsurgnurse.org |
| Aging with Dignity | Resource materials | http://www.agingwithdignity.org |
| Alabama Hospice Organization | State hospice organization. | http://www.alhospice.org |
| Alliance of Community Hospices & Palliative Care Services | Health care provider in portions of Kentucky and Indiana. | http://www.hospices.org |
| American Academy of Hospice and Palliative Medicine | Membership organization. | http://www.aahpm.org |
| American Academy of Pain Medicine | Membership organization. | http://www.painmed.org |
| American Association for Long Term Care Nursing | The American Association for Long Term Care Nursing unites all levels of long-term care nurses for the purpose of advancing excellence in the specialty of long-term care nursing.
| http://www.ltcnursing.org/ |
| American Association of Colleges of Nursing | The American Association of Colleges of Nursing (AACN) is the national voice for America's baccalaureate- and higher-degree nursing education programs. | http://www.aacn.nche.edu/ContactUs/index.htm |
| American Association of Critical-Care Nurses | Membership organization. | http://www.aacn.org |
| American Association of Heart Failure Nurses | A national nursing association specializing in heart failure nursing. | http://www.aahfn.org |
| American Association of Nurse Executives | Web-based organization for nurse executives specializing in long-term care | http://www.aanex.org |
| American Board of Hospice and Palliative Medicine (ABHPM) | Develops standards for training and practice in palliative medicine. | http://www.abhpm.org |
| American Geriatrics Society | Membership organization. | http://www.americangeriatrics.org |
| American Hospital Association Circle of Life Award | Presented annually to recognize outstanding initiatives to improve end-of-life care. | http://www.aha.org/circleoflife |
| American Journal of Hospice and Palliative Medicine | A peer reviewed journal, considers articles in the related fields of hospice and palliative medicine which are scientifically sound and clinically relevant. | http://ajh.sagepub.com |
| American Nephrology Nurses' Association | Mission Statement of the American Nephrology Nurses' Association: ANNA will promote excellence by advancing nephrology nursing practice and positively influence outcomes for individuals with kidney disease.
| http://www.annanurse.org/cgi-bin/WebObjects/ANNANurse.woa |
| American Nurses Credentialing Center (ANCC) | American Nurses Credentialing Center is nursing credentialing, certification, and recertification organization. | http://www.nursecredentialing.org |
| American Pain Foundation, Inc. | Information resource and patient advocacy organization serving people with pain. | http://www.painfoundation.org |
| American Pain Society | Advancing pain-related research, education, treatment and professional practice. | http://www.ampainsoc.org |
| American Society for Pain Management Nursing | Our Mission:
To advance and promote optimal nursing care for people affected by pain by promoting best nursing practices.
| http://www.aspmn.org/ |
| American Society of Law, Medicine & Ethics | Educational & research organization devoted to critical thought in health law, medicine, bioethics & patient care. | http://www.aslme.org |
| Arizona Hospice and Palliative Care Organization | State organization. | http://www.arizonahospice.org |
| Arkansas State Hospice and Palliative Care Association | State organization for Arkansas. | http://www.arkansashospice.org |
| Asbestos.Com | Asbestos.com is committed to providing the latest, up-to-date information to our visitors in the hopes of spreading awareness about the dangers of asbestos cancer. This website offers a one-stop resource on all asbestos issues ranging from occupational exposure to mesothelioma treatment options. | http://www.asbestos.com/ |
| Asbestos.Net | A comprehensive resource on the topic of asbestos and its devastating effects, including mesothelioma, asbestosis, and other asbestos-related diseases. | http://www.asbestos.net |
| Association for Death Education and Counseling | Provides information, support, and resources to its multicultural membership and, through them, to the public. | http://www.adec.org |
| Bladder Cancer Support | | http://www.bladdercancersupport.org |
| California Association for Health Services at Home (CAHSAH) | Statewide home care association. | http://www.cahsah.org |
| California Coalition for Compassionate Care (CCCC) | Statewide partnership of organizations dedicated to the advancement of palliative medicine and end-of-life care. | http://www.finalchoices.calhealth.org |
| California Hospice and Palliative Care Association (CHAPCA) | State organization for California and Nevada. | http://www.calhospice.org |
| Campaign for Better Care | The Campaign for Better Care will go beyond the statistics about chronic illness to put a human face on the issue, to mobilize and engage patients and families to fight for the care they want and need, and to bring the voice of the consumer to policy debates over health care reform and how to implement any new legislation. The goals of the Campaign are to:
1. Make improvements in the health care system so that it delivers high quality, comprehensive, and coordinated care, especially for vulnerable older adults and people with chronic conditions.
2. Build a strong and lasting consumer voice for better health care by mobilizing consumer advocates, older adults,and their families.
| http://www.CampaignforBetterCare.org |
| Cancer Pain Release | Publication of the World Health Organization | http://www.whocancerpain.wisc.edu |
| Care Community | Enclara Health LLC and National Institute of Health support this site for caregivers who are caring for a loved one with life-limiting illness. | http://www.MyCareCommunity.org |
| Caring Connections | Practical resources to help you make informed decisions about end-of-life care. Materials designed to help you talk with your family, doctors and others and develop a plan about the care you want to receive. | http://www.caringinfo.org |
| Center for Ethics in Health Care Oregon Health & Science University | Oregon Center for Ethics | http://www.polst.org |
| Center for Hospice & Palliative Care | Health care provider in New York. | http://www.hospicebuffalo.org |
| Center for Hospice & Palliative Care, Inc. | Health care provider. | http://www.centerforhospice.org |
| Center for Medicare & Medicaid Services Survey & Certification | The hospice survey is conducted in accordance with the appropriate protocols and substantive requirements in the statute and regulations to determine whether a citation of non-compliance is appropriate. Deficiencies are based on a violation of the statute or regulations, which, in turn, is to be based on observations of the hospice’s performance or practices. | http://www.cms.hhs.gov/GuidanceforLawsAndRegulations/07_Hospice.asp |
| Center for Medicare and Medicaid Services (CMS) Medicaid information | Branch of US Dept of Health and Human Services. This link provides general Medicaid information. | http://www.cms.hhs.gov/medicaid/stateplans/ |
| Center for Nursing Advocacy | Promotes a more accurate, balanced and frequent media portrayals of nurses and increase the media's use of nurses as expert sources. | http://www.nursingadvocacy.org |
| Center for Practical Bioethics | Raises and responds to ethical issues in health and healthcare. Publishes State Initiative in End-of-Life Care | http://www.practicalbioethics.org |
| Center to Advance Palliative Care (CAPC) | Provides technical assistance needed to establish palliative care programs as well as opportunities to network with colleagues in the palliative care community; features CAPC publications, education calendar and information about advocacy activities. | http://www.capcmssm.org |
| Centers for Medicare and Medicaid Services (CMS)Link for Medicare services. | Branch of the US Dept of Health and Humans Services. Page specific to Hospice Center. | http://www.cms.hhs.gov/center/hospice.asp |
| Chinese American Coalition for Compassionate Care | Helping Chinese Americans face the end of life with dignity and respect.
| http://www.caccc-usa.org/HOME.html |
| Choosing Thomas | The website includes the nine-minute video chronicling the journey of Deidrea and T.K. Laux after a prenatal diagnosis of trisomy 13. The site also features links to informational sites and resources on perinatal and pediatric hospice and palliative care, including HPNA.
| http://www.dallasnews.com/choosingthomas |
| Chronic Pain Network | Provides healthcare professionals an array of tools and resources to dress their patient's individual needs. | http://www.chronicpainnetwork.com |
| CiteHealth | Give your hospitals, nursing homes, rehab centers, home care agencies and other providers a free check up with our reports. We combine data from government and commercial data sources, direct verification, and people just like you give a complete picture of each provider. | http://citehealth.com/ |
| City of Hope Pain/Beckman Research Institute | Serves as a clearinghouse to disseminate information and resources to improve the quality of pain management. | http://prc.coh.org/ |
| Coalition for Patients' Rights | The Coalition for Patients’ Rights (CPR) consists of 37 organizations representing a variety of licensed health care professionals who provide a diverse array of safe, effective, and affordable health care services to millions of patients each year. | http://www.patientsrightscoalition.org/ |
| Colorado Hospice Organization | State organization. | http://www.coloradohospice.org |
| Dallas Morning News - Edge of Life resources | Dallas Morning News of Dallas, Texas, published a narrative series on palliative care and efforts to improve end-of-life care. | http://www.dallasnews.com/sharedcontent/dws/spe/2008/edgeoflife/ |
| Dying Well | Resources to empower persons with life-threatening illnesses, and their families to live as fully as possible during the dying process. | http://www.dyingwell.org |
| Education for Physicians on End-of-Life Care (EPEC) | Educates physicians on essential clinical competencies required to provide quality end-of-life care. | http://www.epec.net |
| Emergency Nurses Association | The mission of the Emergency Nurses Association is to advocate for patient safety and excellence in emergency nursing practice.
| http://www.ena.org/Pages/default.aspx |
| End of Life/Palliative Education Research Center (EPERC) Fast Facts | Fast Facts Index | http://www.eperc.mcw.edu/ff_index.htm |
| End-of-Life Nursing Education Consortium (ELNEC) | A comprehensive national education program to develop a core of expert nursing educators and to coordinate national nursing efforts in end-of-life care. | http://www.aacn.nche.edu/elnec |
| End-of-Life Physician Education Resource Center (EPERC) | Assists physician educators and others in locating high-quality, peer-revied training materials. | http://www.eperc.mcw.edu |
| EPEC-O | Education in Palliative and End-of-Life Care for Oncology with contact hours | http://www.cancer.gov/cancertopics/cancerlibrary/epeco |
| Epidemiology of Dying and End-of-Life Care (EDELE) | The site provides a searchable catalogue for data about people who died and their families, healthcare and community resources for end-of-life care, use of these resources, and outcome and satisfaction with care. | http://www.edeledata.org |
| Eyes on the Prize | A site supporting women affected by gynecological cancer. | http://www.eyesontheprize.org |
| Federal Regulations for Medicare Hospice | The electronic code of federal regulations specific to hospice care.
TITLE 42--Public Health
CHAPTER IV--CENTERS FOR MEDICARE & MEDICAID SERVICES, DEPARTMENT OF HEALTH AND HUMAN SERVICES
SUBCHAPTER A--GENERAL PROVISIONS
PART 418--HOSPICE CARE
| http://ecfr.gpoaccess.gov/cgi/t/text/text-idx?c=ecfr&sid=9ea0d216d6bd26a1bb304fb8b9803ced&tpl=/ecfrbrowse/Title42/42cfr418_main_02.tpl |
| Finding Our Way: Living With Dying in America | The Finding Our Way national public education initiative is focused on bringing practical information to the American public regarding end of life and its surrounding issues. | http://www.findingourway.net |
| Florida Hospice and Palliative Care, Inc | State organization. | http://www.floridahospices.org |
| Fort Worth Regional Chapter | We are interested in networking with other hospice professionals, to share ideas. We also have a mutual responsibility for serving as a resource on education for hospice issues. | http://www.geocities.com/hpnafw |
| Foundation for Health in Aging (Part of American Geriatrics Society) | The FHA builds a bridge between the research and practice of geriatrics health care professionals and the public. | http://www.healthinaging.org |
| Gay and Lesbian Medical Association | | http://www.glma.org |
| Georgia Hospice and Palliative Care Organization | State organization. | http://www.ghpco.org |
| GeriatricPain.org | The free Geriatric Pain Web site was created in response to the need for better pain assessment and management in long-term care environments. The site is a one-stop Web site that shares best-practice tools and resources that support recommendations for good pain assessment and management in older adults.
| http://www.GeriatricPain.org |
| Gerontological Advanced Practice Nurses Association | The Gerontological Advanced Practice Nurses Association (formerly National Conference of Gerontological Nurse Practitioners) advances the practice of its members and the well being of the public through advocacy, dissemination of knowledge, and provision of member growth opportunities. | https://www.gapna.org/ |
| Gerontology Certificate Program, University of Pittsburgh | University of Pittsburgh offers a certificate in Gerontology. | http://www.pitt/.edu/~cgs/gerontology.htm. |
| Gerontology Nurse Online | Nursing resources for care of older ults. | http://www.ConsultGeriRN.org |
| Get Palliative Care.org | Palliative care resource site for patients and their families. | http://www.getpalliativecare.org |
| Grand Valley Hospice & Palliative Care | Health care provider in Colorado. | http://www.gvhospice.com |
| Grief Resources Catalog | Website catalog of grief booklets, books and tapes. | www.griefresourcescatalog.com |
| Grieving Center | An independent, non-profit based channel. | http://www.grievingcenter.org |
| Growth House Inc. - Hospice Section | Site which provides links and subject matter to many fields of health care. This particular link will take you to the hospice homecare section. | http://www.growthhouse.org/hospice.html |
| Hard Choices for Loving People | A resource for professionals, patients and their families regarding end-of-life decisions. | http://www.hardchoices.com |
| Hawaii Islands Hospice Organization | State organization. | http://kokuamau.org |
| HCR Manor Care | Health care provider. | http://www.hcr-manorcare.com |
| Home Health Quality Improvement | Initiative in home health to reduce avoidable hospitalizations. | http://www.homehealthquality.org |
| Hope Hospice | Health care provider. | http://www.hopehospice.org |
| Hospice & Palliative Care Federation of Massachusetts | State organization. | http://www.hospicefed.org |
| Hospice and Palliative Care Association of New York State | State organization. | http://www.hpcanys.org |
| Hospice and Palliative Care Council of Vermont | State organization. | http://www.hpccv.org |
| Hospice and Palliative Care Network of Maryland | State organization. | http://www.hnmd.org |
| Hospice Association of Nevada (California Hospice & Palliative Care Organization) | State organization. | http://www.calhospice.org |
| Hospice Council of West Virginia | State organization. | http://www.hospicecouncilofwv.org/ |
| Hospice Directory.org | Web listing of state organizations and other end of life resources. | http://www.hospicedirectory.org/cm/about/state_hospice |
| Hospice Foundation of America | Conducts programs on terminal illness, death, process of grief and bereavement. | http://www.hospicefoundation.org |
| Hospice Minnesota | State organization. | http://www.hospicemn.org |
| Hospice of the Chesapeake | Health care provider. | http://www.hospicechesapeake.org |
| How We Die | This site will explore how our most personal experiences have shaped what we believe about death and dying, and about the decisions we make for ourselves, for loved ones, or for patients at the end of life. The site welcomes stories from patients, their families, loved ones and friends, and doctors and healthcare professionals. | http://www.how-we-die.org/HowWeDie/home |
| Idaho State Hospice Organization | State organization. | http://www.hospiceidaho.org |
| Illinois Hospice and Palliative Care Organization | State organization. | http://www.il-hpco.org |
| Improving Quality of Care for Our Most Vulnerable Population | A consumer advocacy organization in Rhode Island. | http://www.chcr.brown.edu/commstate/homepagewithframes.htm |
| Indiana Hospice and Palliative Care Organization | State organization. | http://www.ihpco.org |
| Innovations in End-of-Life Care | Online journal features peer-reviewed examples of promising practices in end-of-life care. This is a site of archived material. | http://www.edc.org/lastacts |
| International Association for Hospice and Palliative Care | The International Association for Hospice and Palliative Care is dedicated to "sharing palliative care information Worldwide". | http://www.hospicecare.com |
| Iron Overload Nurse Ambassador | A website supported by Novartis to educate about Iron Overload with a goal of building a nationwide community of Iron Overload Nurse Ambassadors to help prevent IO at-risk patients. | http://www.IronOverloadNurses.com |
| John A. Hartford Foundation: Institute for Geriatric Nursing | Working to improve the quality of nursing care delivered to the older adult population on a national level. | http://www.hartfordign.org |
| Joint Commission Advanced Certification for Palliative Care Programs | The Joint Commission’s new Advanced Certification Program for Palliative Care (available beginning September 1, 2011) is designed to recognize hospital inpatient programs that demonstrate exceptional patient and family-centered care in order to optimize the quality of life for patients with serious illness. Palliative care involves addressing physical, emotional, social and spiritual needs and facilitating patient autonomy, access to information and choice. | http://www.jointcommission.org/certification/palliative_care.aspx |
| Journal of Hospice and Palliative Nursing | This is the official journal of the Hospice and Palliative Nurses Association. JHPN is the professional, peer-reviewed journal for nurses in hospice and palliative care settings. Focusing on the clinical, educational and research aspects of care, JHPN brings current and reliable information to the practice of end of life care nurses. Feature articles in areas such as symptom management, ethics, and helpful hints on physical care address holistic care across the continuum. | http://www.jhpn.com |
| Kansas Hospice and Palliative Care Organization | State organization. | http://www.lifeproject.org/akh.htm |
| Kentucky Association of Hospice and Palliative Care | State organization. | http://www.kah.org |
| Kokua Mau | A partnership of individuals and organizations working with the general public and with the leaders of healthcare and government to improve health care. | http://www.Kokua-mau.org |
| Krames on Demand | Educational materials | http://www.krames.com |
| Last acts | Archived material from this national coalition which has closed. | http://www.lastacts.org |
| Last Chapters | Offers a collection of inspiring stories and video interviews of people who are facing death or chronic illness. | http://www.theconnection.org/shows/2001/07/20010731_b_main.asp |
| Living Initiatives for End-of-Life Care | A coalition of many organizations that are working together to improve end of life care in Kansas. | http://www.lifeproject.org |
| Louisiana-Mississippi Hospice and Palliative Care Organization | State organization. | http://www.lmhpco.org |
| Maine Hospice Council | State organization. | http://www.mainehospicecouncil.org |
| Mayo Clinic | Resource materials | http://www.mayoclinic.com |
| Medicare Drug Benefit Calculator | Supported by the Henry J Kaiser Family Foundation | http://www.kff.org/medicare/rxdrugscalculator.cfm |
| Medicare Hospice Benefit | Government publication # 02154 available for the Medicare client.
Also available in large print or Spanish. | http://www.medicare.gov/Publications/Search/Results.asp?PubID=02154&Type=PubID&Language=English |
| Medicare Rights Center (MRC) | The Medicare Rights Center is a not-for-profit organization dedicated to ensuring that older adults and people with disabilities get good, affordable health care. | http://www.medicarerights.org |
| Mesothelioma Cancer Center | | http://www.asbestos.com |
| Mesothelioma Prognosis | Covers Causes, Diagnosis, Prognosis, Tretments, and Legal Issues Associated with Mesothelioma. | http://www.mesotheliomaprognosis.org/mesothelioma-prognosis |
| Mesothelioma Symptoms | MesotheliomaSymptoms.com is an extensive database of information and resources for patients and their families to better understand the symptoms of mesothelioma and the various aspects of diagnosis, prognosis, treatment, and many other factors of survival. | http://www.mesotheliomasymptoms.com |
| Mesothelioma Web | Mesothelioma, a rare cancer of the lining of the lung, is caused by exposure to asbestos. | http://www.mesotheliomaweb.org/mesothelioma.htm |
| Mesothelioma: Symptoms, Diagnosis and Treatment | Mesothelioma resources including doctor and treatment center databases for each state. | http://www.mesotheliomahelp.net/ |
| MesotheliomaPrognosis.net | Offers a comprehensive list of doctors, cancer centers, and treatment options. | http://www.mesotheliomaprognosis.net/ |
| MHA An Association of Montana Health Care Providers | State organization. | http://www.mtha.extendcare/h1.htm |
| Michigan Hospice & Palliative Care Organization | State organization. | http://www.mihospice.org |
| Midwest Care Alliance | Ohio state organization for home, hospice and palliative care. | http://www.midwestcarealliance.org |
| Missouri Hospice & Palliative Care Organization | State organization. | http://www.mohospice.org |
| n4a | n4a’s primary mission is to build the capacity of its members to help older persons and persons with disabilities live with dignity and choices in their homes and communities for as long as possible.
| http://www.n4a.org/ |
| National Association Directors of Nursing Administration/Long Term Care (NADONA) | Association serving Directors and Assistant Directors of nursing in Long Term Care. | http://www.nadona.org |
| National Association of Nurse Massage Therapists | | http://www.nanmt.org/ |
| National Board for Certification of Hospice and Palliative Nurses | Oversees hospice and palliative specialty certification all levels of nursing (APN, RN, LP/VN and Nursing Assistant) and the Administrator. | http://www.nbchpn.org |
| National Cancer Institute | The National Cancer Institute (NCI) is a component of the National Institutes of Health (NIH)in the Department of Health and Human Services (DHHS). The NCI is the Federal Government's principal agency for cancer research and training. | http://www.nci.nih.gov |
| National Coalition of Ethnic Minority Nurse Associations | NCEMNA | http://www.ncemna.org/index.asp |
| National Consensus Project | The purpose of the National Consensus Project for Quality Palliative Care is to promote the implementation of Clinical Practice Guidelines that ensure care of consistent and high quality, and that guide the development and structure of new and existing palliative care services. | http://www.nationalconsensusproject.org |
| National Fibromyalgia Association | Resources on fibromyalgia. | http://www.FMaware.org |
| National Gerontological Nurses Association | The National Gerontological Nurses Association (NGNA) is dedicated to the clinical care of older adults across diverse care settings. Members include clinicians, educators, and researchers with vastly different educational preparation, clinical roles, and interest in practice issues. | https://www.ngna.org/ |
| National Guideline Clearinghouse | Public resource for evidence-based clinical practice guidelines. | http://www.guidelines.gov |
| National Hospice and Palliative Care Organization(NHPCO) | National Hospice & Palliative Care Organization supports workers in the field of hospice and palliative care. | http://.www.nhpco.org |
| National Institute for Trauma and Loss in Children (TLC) | Resource materials to help children, parents, families and schools traumatized by violent or nonviolent trauma-inducing incidents. | http://www.tlcinst.org |
| National League for Nursing | Dedicated to excellence in nursing education, the National League for Nursing is the preferred membership organization for nurse faculty and leaders in nursing education. | http://www.nln.org/ |
| National Palliative Care Research Center (NPCRC) | Advancing the quality of care of persons with serious illness by strengthening the reseach base underlying clinical practice. | http://www.npcrc.org |
| National Partnership for Women and Families | Founded in 1971 as the Women’s Legal Defense Fund, the National Partnership for Women & Families is a nonprofit, nonpartisan 501(c)3 organization located in Washington, DC.
| http://www.nationalpartnership.org/site/PageServer?pagename=about |
| National Student Nurses' Association, Inc. | Membership organization. | http://www.nsna.org |
| Natural Standard | Complementary and alternative therapies. | http://www.naturalstandard.com |
| Nebraska Hospice and Palliative Care Association | State organization. | http://www.nebraskahospice.org |
| Nevada Center for Bioethics | End-of-life resources in Nevada. | http://www.unr.edu/ncehp |
| New Hampshire Hospice and Palliative Care Organization | State organization. | http://www.nhhpco.org |
| New Jersey Hospice & Palliative Care Organization | State organization. | http://www.njhospice.org |
| North Carolina Coalition on End-of-Life Care | State organizatoion. | http://www.carolinasendoflifecare.org |
| North Dakota Hospice Organization | State organization. | http://www.ndhospice.com |
| Northern London Hospice | Provides specialist palliative care for people in Great Britain who have advanced progressive disease. | http://www.northlondonhospice.co.uk/ |
| Nurses for a Healthier Tomorrow | Nurses for a Healthier Tomorrow (NHT) is a coalition of 24 nursing and health care organizations working together to attract people to the nursing profession. | http://www.nursesource.org |
| Nurses Imporving Care for Healthsystem Elders (NICHE) | Our mission is to provide the principles and tools to stimulate a change in the culture of
healthcare facilities and achieve patient-centered care for older adults. NICHE is unlike other
programs in that it does not prescribe how institutions should modify geriatric care. Rather, it
provides the materials and services necessary to initiate and support the planning and
implementation process. | http://www.nicheprogram.org |
| Oklahoma Hospice and Palliative Care Organization | State organization. | http://www.okhospice.org/ |
| OMEGA Journal of Death and Dying | A peer-reviewed journal incorporating research and contributions from a wide range of disciplines. | http://www.baywood.com |
| On Our Own Terms: Moyers on Dying | Supports the On Our Own Terms outreach campaign with various tools, articles, personal stories, audio and video clips, and interactive opportunities. | http://www.thirteen.org/onourownterms |
| Oncology Nursing Society | The Oncology Nursing Society (ONS) is a professional organization of over 37,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research, and administration in oncology nursing. It's also the largest professional oncology association in the world.
| http://www.ons.org/about/index.shtml |
| Opiod Conversion Program/Sidney Kimmel Cancer Center at Johns Hopkins | Registration required. Free service. | http://www.hopweb.org/hop/login.cfm |
| Oregon Hospice Association | State organization. | http://www.oregonhospice.org |
| Palliative Care: One Vision. One Voice. | Nurses share initiatives and projects related to improving patient care at the end of life. | http://www.palliativecarenursing.net |
| Palliative Demetia Care Resources | Resources for professionals and families related to care of patients with dementia. | http://www.pdcronline.org |
| Palliative Doctors.Org | Developed to help patients and families find the care they need. Directs visitors to a host of credible resources, including books and other Web sites, for related information. Features testimonials of patients and families who have had positive experiences with hospice and palliative doctors.
| http://www.PalliativeDoctors.org |
| Partners Against Pain | Through its Medical Education Department, Purdue Pharma offers a variety of educational programs primarily in the area of pain management. | http://www.partnersagainstpain.com |
| Pennsylvania Hospice Network | State organization | http://www.pahospice.org |
| PERT Program | The PERT Program has developed a comprehensive curriculum of educational materials and resources to enhance end-of-life care in long-term care facilities. | http://www.swedishmedical.org/pert |
| Pikes Peak Hospice & Palliative Care | The mission of Pikes Peak Hospice & Palliative Care is to provide compassionate, comprehensive and specialized end-of-life care. | http://www.pikespeakhospice.org |
| Population-Based Palliative Care Research Network | Research studies, publications and links. | http://www.uchsc.edu/popcrn/ |
| Preventive Cardiovascular Nurses Association | A national nursing organization dedicated to preventing cardiovascular disease. | http://pcna.net |
| Project on Death in America | Dedicated to understanding and transforming the culture and experience of dying and bereavement through initiatives in research, scholarship, the humanities and the arts and to fostering innovations in the provision of care, public education, professional education and public policy. | http://www.soros.org/death |
| Quality Insights of Pennsylvania | At Quality Insights of Pennsylvania, our vision is an environment where health care is safe, effective, patient-centered, timely, efficient and equitable.
| http://www.qipa.org/pa/ |
| RAND Center to Improve Care of the Dying | Conducts research designed to improve a system of care in which persons with serious and eventually fatal chronic illness can live comfortably and meaningfully until death. | http://www.rand.org/organization/health/dying.html |
| Relief Matters | Constipation Associated with Opioid Therapy in Palliative Care. Site supported by Wyeth.
| http://www.wyeth.com/reliefmatters |
| Social Work Hospice and Palliative Care Network (SWHPN) | We are an emerging network of social work organizations and leaders who seek to further the field of end-of-life and hospice/palliative care… in other words, we are advancing the role of the social worker in caring for the seriously ill, providing relief from pain, improving quality of life, supporting family and friends, assisting with difficult decision-making, and help in dealing with trauma, grief and loss. | http://www.swhpn.org/ |
| South Dakota Association of Healthcare Organizations | State organization. | http://www.southdakotahospice.org |
| Southern California Cancer Pain Initiative (SCCPI) | Volunteer interdisciplinary organization dedicated to the relief of cancer pain. | http://sccpi.coh.org/ |
| Spiritual Care Program Website | Resource for Buddhist insights and teachings to improve care for the dying. | http://www.spcare.org |
| Tennessee Hospice Organization | State organization. | http://www.tha.com/tho/ |
| Texas & New Mexico Hospice Organization | State organization. | http://www.txnmhospice.org |
| The Carolinas Center for Hospice and End of Life Care | North Carolina and South Carolina state organization. | http://www.carolinasendoflifecare.org |
| The Coalition for Patients’ Rights (CPR) | The Coalition for Patients’ Rights (CPR) consists of 35 organizations representing a variety of licensed health care professionals who provide a diverse array of safe, effective, and affordable health care services to millions of patients each year.
| http://www.patientsrightscoalition.org/ |
| The Director Journal | Official journal of the National Association Directors of Nursing Administration in Long Term Care (NONA/LTC).
Call 1-800-222-0539 to learn more.
| http://www.nadona.org/index.php |
| The Hospice Organization and Palliative Experts of Wisconsin (HOPE) | State association. | http://www.wisconsinhospice.org |
| Toolkit of Instruments to Measure Care at the End of Life (TIME) | An authoritative bibliography of instruments to measure the quality of care and quality of life for dying patients and their families. | http://www.chcr.brown.edu/pcoc/toolkit.htm |
| University of Pittsburgh Institute on Aging POLST resources | Pensylvania resources/POLST tools. | http://aging.upmc.com/professionals/resources-polst.htm |
| University of Pittsburgh Institute to Enhance Palliative Care | | http://www.dom.pitt.edu/dgim/IEPC/ |
| US Living Will Registry | The mission of the U.S. Living Will Registry is to promote the use of advance directives through educational programs. | http://www.uslivingwillregistry.com |
| Utah Hospice and Palliative Care Organization | State organization. | http://www.utahhospice.org |
| Virginia Association for Hospices | State organization. | http://www.virginiahospices.org |
| Washington State Hospice & Palliative Care Organization | State organization. | http://www.wshpco.org |
| West Central Florida | Local chapter site offers links and postings of their programs. | http://www.wcfhpna.org/ |
| West Virginia Center for End-of-Life Care | State organization. | http://www.hsc.wvu.edu/chel/wvi/ |
| West Virginia Center for End-of-Life Care POST | | http://wvendoflife.org |